** HELP a fighter. Thank you sherdog, second time we REACH GOAL ***

Everyone: you may want to use the watch thread function because this thread will drop to pages 2/3 quickly and will be harder to find .
 
@LokoLoa Today i went to doctor while im using Azarga, left eye pressure was 14, and right eye 8 . I am using it 2 times a day now. I have sent my doctor your opinion , as a print screen :)
Today or tommorow i will for sure let you all my documents to hear your opinion. As you can see i am not answering whole day because i am busy with this things.
@Peteyandjia Thank you and all sherdog admins and moderators who step once again to stick this thread, because of you i have reached goal again. I will keep update for sure because you people deserve it and probably expecting to hear from me.
@KarateYeah I hope they will calculate your new donation because as far i know a guy who is doing gofundme stoped it like 12 hours ago or something like that.
Thank you very much for doing it for me once again.
 
Aleksandar Stojkovic said:
@LokoLoa Today i went to doctor while im using Azarga, left eye pressure was 14, and right eye 8 . I am using it 2 times a day now. I have sent my doctor your opinion , as a print screen :)
Today or tommorow i will for sure let you all my documents to hear your opinion. As you can see i am not answering whole day because i am busy with this things.
@Peteyandjia Thank you and all sherdog admins and moderators who step once again to stick this thread, because of you i have reached goal again. I will keep update for sure because you people deserve it and probably expecting to hear from me.
@KarateYeah I hope they will calculate your new donation because as far i know a guy who is doing gofundme stoped it like 12 hours ago or something like that.
Thank you very much for doing it for me once again.
Click to expand...

Great, I'm relatively happy with a pressure of 14. I'd prefer it was around 10, but that's a lot better than 25. Yes, all your eye-related medical records and photos would be very useful. Medical records are very private, and you have the right to them. I would not review them without your permission.

Feel free to share my posts with your doctor. A lot of what I wrote was speculation because I am trying to get to the bottom of what, exactly, is going on. I'm also trying to explain what may be happening to you and others on this thread who doubted you. I can't blame the doubters, though, because this is very complicated. In fact, it's much more complex than I would feel comfortable with if you stepped into my clinic. That's what sub-specialists are for.

I hope your thread does its bit to increase awareness. The human body is unbelievably complex, and it doesn't come with an owner's manual.
 
LokoLoa said:
Great, I'm relatively happy with a pressure of 14. I'd prefer it was around 10, but that's a lot better than 25. Yes, all your eye-related medical records and photos would be very useful. Medical records are very private, and you have the right to them. I would not review them without your permission.

Feel free to share my posts with your doctor. A lot of what I wrote was speculation because I am trying to get to the bottom of what, exactly, is going on. I'm also trying to explain what may be happening to you and others on this thread who doubted you. I can't blame the doubters, though, because this is very complicated. In fact, it's much more complex than I would feel comfortable with if you stepped into my clinic. That's what sub-specialists are for.

I hope your thread does its bit to increase awareness. The human body is unbelievably complex, and it doesn't come with an owner's manual.
Click to expand...

I understand you are a professor; I hope your students understand just how lucky they are to have such an instructor. If they were to all end up with an attitude such as yours we would have much better doctors, in general.

Again, thank you for your absolutely massive contribution.
 
I'm wishing the best for you Aleks.

aleks-jpg.159723
 

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catchwrestle1 said:
I understand you are a professor; I hope your students understand just how lucky they are to have such an instructor. If they were to all end up with an attitude such as yours we would have much better doctors, in general.

Again, thank you for your absolutely massive contribution.
Click to expand...

Thanks for the kind words. To be honest, I'm very disorganized and get speaking anxiety. I do much better one-on-one with graduate students. I'm comfortable with anonymity.
 
@bigwaverider thank you bro, this picture you have done its amazing. Really like it alot.

@LokoLoa i have sent you email with all my documents. Will be waiting for your opinion.
Also when i use drops Azarga at morning and evening , pressure seems to be normal and fine ( from my point of view ) after that i feel again i could not see clearly. Yesterday night i was watching some fights on TV from distance and before i was supposed to read, not again same feeling pressure is going high. I will tell doctors aswell that if its going to be same over and over, during night my optic nerves will be damaged and i have big chance of losing vision which i really dont even want to imagine...
 
Did Ariel ever mention anything? I wanted to get a hold of him but I don't have any social media accounts.
 
LokoLoa said:
Thanks for the kind words. To be honest, I'm very disorganized and get speaking anxiety. I do much better one-on-one with graduate students. I'm comfortable with anonymity.
Click to expand...

I don't think I've come across such an insightful poster across all genuine forums in all aspects than you shared your insight into this, I think anybody can appreciate your input, Alek for his own health and us for being able to understand such a complicated matter, appreciate it.
 
Aleksandar Stojkovic said:
@bigwaverider thank you bro, this picture you have done its amazing. Really like it alot.

@LokoLoa i have sent you email with all my documents. Will be waiting for your opinion.
Also when i use drops Azarga at morning and evening , pressure seems to be normal and fine ( from my point of view ) after that i feel again i could not see clearly. Yesterday night i was watching some fights on TV from distance and before i was supposed to read, not again same feeling pressure is going high. I will tell doctors aswell that if its going to be same over and over, during night my optic nerves will be damaged and i have big chance of losing vision which i really dont even want to imagine...
Click to expand...

Thanks for the documents, Aleks. I just downloaded them and will review them. I can figure out most of what's written on these records (medical terms similar in different languages). I use google translate for the other stuff. Hang in there. I'll get back to you ASAP.
 
@LokoLoa Thanks, i am waiting . Hope there is document about retina also because its from June this year, when i was doing it.
 
LokoLoa said:
Thanks for the documents, Aleks. I just downloaded them and will review them. I can figure out most of what's written on these records (medical terms similar in different languages). I use google translate for the other stuff. Hang in there. I'll get back to you ASAP.
Click to expand...

The internet is a crazy thing.
 
Aleksandar Stojkovic said:
@LokoLoa Hey, any news about documents ?
Click to expand...

Hey, Aleks. I'm going through your info now. If it's taking awhile, it's because I put all the documents in chronological order, renamed them accordingly, then converted to pdf files to annotate in English. I'm going by my knowledge of medical terminology, Polish (close enough to Serbian), and Google translate to understand the medical records.

I'll go through them in more detail tomorrow (it's 2AM here) but here's my take after a few looks.

Any remaining doubters should know that you are definitely honest about your condition. It's almost impossible for someone without intimate knowledge of medicine to have faked all of this.

As you said: You have glaucoma in both eyes. In your case, it is high-tension glaucoma, meaning it's because of high pressures in your eyes. Some people can get glaucoma with normal pressures. I'll call pressures IOP from now on (it stands for intra-ocular pressure).

Although there's no record of your surgeries themselves, your follow-up records say you've had surgeries in both eyes called trabeculectomies. You described this surgery very well in another post: it's essentially cutting out a piece of tissue from inside your eye to let the fluid flow out of it.

Your IOPs are up and down, and the left eye has been dangerously high lately. Your right eye is functionally blind, so we need to preserve vision in your left eye at all costs. Given your visual fields, you may actually be considered legally blind already: legal blindness doesn't necessarily mean you don't see anything. If your visual field is restricted enough, you can be considered legally blind. Nobody wants to hear this, but if you are considered "blind" under the law, you may qualify for certain benefits.

The procedure they're going to try to decrease your pressure is called "needling a bleb". A bleb is a raised area where fluid builds up. A raised bleb is good, it means that the fluid is building up where it should. "Needling it, is basically poking holes through the scar tissue that has formed in it. Sometimes they'll use 5-FU (5-fluorouracil) or Mitomycin, which prevent scarring. These are "anti-metabolites" that are also used in cancer treatment as chemotherapy. They can be tricky to use because they can cause complication. Here's a video of the procedure.



I have a few concerns about what you've sent me so far. First, they never give a complete diagnosis. "Juvenile glaucoma" isn't good enough. You need to know more, such as whether it's open angle, closed angle, or even traumatic. For the most personalized treatment, you need to know exactly what's going on. I would like to see a gonioscopy report or even an anterior segment OCT (optical coherence tomography). The codes they put in your chart are mainly for billing and accounting purposes. They're not very informative. Second, I only saw "retinal dystrophy" mentioned a few times. This diagnosis seems to come out of nowhere. I didn't see any images that would confirm or contradict the diagnosis. Your previous report from what I presume was your hospital doctor said something different (birdshot chorioretinopathy). I don't know what you have, or even if you have a retinal problem without seeing the photos and fluoresceins. Get your HLA-b29 results.

The one thing that irks me is that they keep switching meds on you. I would start with one medication and add until the pressure is controlled. They seem to switch for no reason.

Conclusion for today: You definitely need to keep your IOP under control. I don't know what your retinal problem is, or even if there is a problem.

The shots of vodka just hit me, so I'll stop here. I'll be back tomorrow.
 
I hope u recover soon man. And you will :) keep a positive attitude you will be ok
 
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