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One thing that nags at me about these inspirational videos of persons with massive deformities is that they're always men.
Being born a female - where your physical beauty is fundamental to your identity, to how you are valued, to how seriously you are taken, and to what you can achieve - with a horrible deformity is such a more difficult life.
In the case of Jono Lancaster, Latif Khatana, and a host of other men with facial deformities including TC , all of them ended up with wives who are beautiful by prevailing physical standards.
For a woman with Treacher Collins? Your prospects are much more limited in every way, but especially with regard to finding a romantic partner. So, while I applaud Lancaster for not being scared of passing it on to his children, I wish more attention were paid to the fact that his daughter will have an objectively more difficult time with it than he did.
Being born a female - where your physical beauty is fundamental to your identity, to how you are valued, to how seriously you are taken, and to what you can achieve - with a horrible deformity is such a more difficult life.
In the case of Jono Lancaster, Latif Khatana, and a host of other men with facial deformities including TC , all of them ended up with wives who are beautiful by prevailing physical standards.
For a woman with Treacher Collins? Your prospects are much more limited in every way, but especially with regard to finding a romantic partner. So, while I applaud Lancaster for not being scared of passing it on to his children, I wish more attention were paid to the fact that his daughter will have an objectively more difficult time with it than he did.