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Retinoschisis

jimbo7

White Belt
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May 4, 2006
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Hello fellow sherdogers,

I've been struggling living life without bjj and just wanted to get your opinion on the matter. I had to stop bjj about a year and a half ago at the advice of my doctor at Doheny Eye Institute. I have retinoschisis, which is a retina disease where the layers of the retina just start separating and the doctors don't really know why that it. This caused a detached retina at the age of 16. I had the procedure to save the eye that had the detached retina, but had crappy insurance, so my local opthamologist helped me monitor my eye. He lasered my other eye when the retina started to detached. I have regular vision in one eye and only have peripheral in another.

Fast forward ten years. I start bjj and fell in love with it. If I wasn't training, I was reading, watching or thinking about bjj. It was a beautiful outlet for me. On top of the daily stress of life like work, relationships, I also have two schizoaffective siblings that I help manage their treatment and lives. I'm their support and a lot of stress come from it. I suffer from depression and went to therapy, but found that bjj was really good at relaxing me and made me feel alive. I'm in a better place in life and have a decent job, but haven't gone back to Doheny to check out my eyes, which I really should because my insurance covers it.

So I've been training for 3 years without too any major injuries. Mostly just sprains, bruises and cuts. No eye injuries what so ever. So I go to Doheny and when I told my doctor I did bjj, she told me I have to quit. She said she has had clients that were boxers, mma guys and even bjj guys. She told them to stop and they didn't and a good number of them lost their eye...some even both. She knows bjj isn't striking and there isn't any study that says that getting choked or smashed with forearms in your face and eyes would cause the retina to detached, but she believes that it isn't good for the retina because of all that pressure from chokes or getting your face smashed in various positions or chokes. She stated that there is still a lot to be learned about my disease that she doesn't think I should risk it because I only have one eye I can see out of and should protect it.

I tried to reason with her and talked about a helmet or head gear with a face guard. She said that would only protect against some of it. Helmets move around and and my eyes could still be smashed. She also said that it didn't address the issue of chokes. I told my family and friends and they all thought I should quit, but they don't understand how much I love bjj, but I did. I just started training at Shawn Williams and it was awesome. It was my dream academy. It was so technical and the people were friendly and if they went as hard as you went, which is perfect for me.

So, I wanted to be responsible and not make people worry and also watch out for my eye. I don't want to be disable you know, but its been very difficult. I still feel like there is a giant void in my life. I haven't been able to detach myself from bjj. I lurk the forums every day and such. I feel like an addict that is going through withdrawal, but its been a year and a half and its still just as difficult. I was trying to find something else to replace it, but nothing seems to be able to.

Its funny how when you think of it, its just guys rolling around the floor, but people are so passionate about it, feeling often get hurt and there is a lot of bjj drama all around. But I can totally understand why people love it. I loved it because unlike anything else in life, I totally felt like I had control. Even if I was rolling against somebody better, I felt like I had control because I could get better. It was also a very meditative experience for me.

So, I guess, my question to you is, do you think I should train? I think I already know the answer, but I just wanted to hear from other people that don't know me. And yes, I know I could get a second opinion, and I have and its essentially the same thing. There is no evidence that bjj would be of any more danger to me than the average person. They don't recommend anybody get choked out or have they eyes smashed, but there is still a lot to be learned about my disease and its better to be safe than sorry, but its my eyes and its up to me to make that decision. Thanks for reading and thanks to those that answer. Peace.
 
I didnt want you to think I read you thread and didnt care, just because I didnt reply or infact that I didnt even read your thread, I did.

Im sure lots of people wont reply, because they dont know what to say. I dont know what to say - sorry.
 
I say do what makes you happy bro. As long as your willing to accept the risk involved, go for it.
 
I think if you get professional advice from an expert you trust, you should take that advice.

There are more things in life that a martial art. Going blind ruins most of those too.
 
Well, I can't offer any advice on what you should do, but I can offer this:

The awful part of becoming disabled is that you're prevented from doing and experiencing the things you love. If you give up the things you love now, I can imagine that it would be a taste of the sting of actually losing your eyesight. Obviously, losing your vision entirely (and all the activities that require it) would be worse than just losing jiu-jitsu, but ultimately it's up to you to decide what you're willing to sacrifice, and what the risks are worth. If I knew you personally, I would advise you to protect your vision, and drop BJJ. But, I certainly wouldn't blame you for continuing to train. Yeah, there are people who depend on you, but you can't be faulted for taking your own risks. A highway that I frequent is a veritable deathtrap, but I'm not giving up my motorcycle. Whatever you decide, there's no "wrong choice" as long as it genuinely reflects what you value.

And remember, if you quit jiu-jitsu, and really can't find something to take its place, you can always go back.

Good luck.
 
Even if it's not getting the full bjj experience, you could drill and flow roll for the better part of your time doing bjj. No hard rolls, unless you're feeling really comfortable with your partner. But if he blinds you, remember that will be on his conscious the rest of his life probably. So, just be responsible with it and keep it playful man. You can enjoy bjj without mundial rolls
 
Even if it's not getting the full bjj experience, you could drill and flow roll for the better part of your time doing bjj. No hard rolls, unless you're feeling really comfortable with your partner. But if he blinds you, remember that will be on his conscious the rest of his life probably. So, just be responsible with it and keep it playful man. You can enjoy bjj without mundial rolls

I think this is a good answer. You only get one shot at life, all you can do is tailor what you do to try and minimise risk.
 
If your truly love the art, which it sure sounds like you do. You can find a training partner that knows what you are dealing with. This way you can practice technique until you are exhausted, and if you are willing do some flow rolling. I don't recall you stating your rank, but maybe you would be able to teach a kids class. There are many ways to involve yourself w/ bjj w/o having to risk your eyesight. You just may never be a competitor. Which isn't so bad.
 
We've had a few "sick" guys at my gym. The coach is aware. The coach cares. They don't roll, unfortunately. I can tell they want to. But they don't. But at the very least, they go through the lesson plan and get their reps in. Just because you don't roll doesn't mean you can't practice. And maybe you can find a partner to roll with you super slowly. I wouldn't say to quit altogether. But it's worth considering quitting rolling.


On another side (my more reckless side) I say, eff it. You're already damn near blind in that eye. How much difference would it be? No BJJ and partial blindness? or BJJ and full loss in one eye. The choice is yours. It's a tough choice no doubt. But like I said man, I think it's worth it to at least just get your reps in.

Good luck man.
 
I would have a chat with your instructor about why you left, and see what his take on it is. If anything you could consider taking private lessons to just learn technique, or he could maybe set you up with technical and considerate partners.

Ultimately it is your eyesight and your choice. No one here can tell you that you should train, considering you have both a primary and secondary opinion that you really just should not.

And btw, you can train jiu jitsu blind. I've seen it, same with judo. That said I would stick with what your doc says if you enjoy having your eyesight. It's a shit hand you've been dealt, sorry bud.
 
That really sucks, but I gotta say I would not dream of training BJJ if there was an appreciable risk I'd go blind as a result.

If I was already blind, on the other hand, I would definitely train BJJ, it's a great sport for blind people.

Ironically you are in a middle position where it doesn't make sense. Much as I love combat sports, there are many other terrific things you can do in life. Retinal disease is awful and it sounds like you are still young, I would hold off.
 
Try sambo, no chokes (iirc) thats the best you can do, im in a situationm similar to you, not that serius though, i mean is not my eye, but still pretty fucked up...
 
I didnt want you to think I read you thread and didnt care, just because I didnt reply or infact that I didnt even read your thread, I did.

Im sure lots of people wont reply, because they dont know what to say. I dont know what to say - sorry.

Thanks man. I appreciate you taking time and just letting me know you care. :0)

Even if it's not getting the full bjj experience, you could drill and flow roll for the better part of your time doing bjj. No hard rolls, unless you're feeling really comfortable with your partner. But if he blinds you, remember that will be on his conscious the rest of his life probably. So, just be responsible with it and keep it playful man. You can enjoy bjj without mundial rolls

Yeah, the instructor was very accomodating and said I could just drill. The cool thing about Shawn Williams is that they have built in open mat between classes for me to do just that. I love to drill, but I'd also want to apply what I've drilled and I'd feel bad if I could only apply the move and not have it applied on me. It feels like I"m just taking. It was just too hard for me to limit my training so much.

If your truly love the art, which it sure sounds like you do. You can find a training partner that knows what you are dealing with. This way you can practice technique until you are exhausted, and if you are willing do some flow rolling. I don't recall you stating your rank, but maybe you would be able to teach a kids class. There are many ways to involve yourself w/ bjj w/o having to risk your eyesight. You just may never be a competitor. Which isn't so bad.

Yeah I do :0) Thanks for the input. I'm a low blue and I enjoyed competing. I was a recreational bjjer. Trained 2-3 times a week and did about 2 days of s&t. I'm pretty average. Placed in smaller local tournaments, but didn't make a dent in the bigger ones. I hoped to help out and teach, but as a low blue, I really don't feel my knowledge is there.

We've had a few "sick" guys at my gym. The coach is aware. The coach cares. They don't roll, unfortunately. I can tell they want to. But they don't. But at the very least, they go through the lesson plan and get their reps in. Just because you don't roll doesn't mean you can't practice. And maybe you can find a partner to roll with you super slowly. I wouldn't say to quit altogether. But it's worth considering quitting rolling.


On another side (my more reckless side) I say, eff it. You're already damn near blind in that eye. How much difference would it be? No BJJ and partial blindness? or BJJ and full loss in one eye. The choice is yours. It's a tough choice no doubt. But like I said man, I think it's worth it to at least just get your reps in.

Good luck man.

Thanks man. The issue even my good eye has this condition and its the good eye that my doctor is worried about. She doesn't want me to lose that one and become blind and she doesn't think I can controll myself and just drill. I don't even trust myself. It's like telling an addict to just take drugs responsibily, like after work and not behind the wheel or anything like that when its hard and I don't know if I really can do it. I just enjoy rolling.



That really sucks, but I gotta say I would not dream of training BJJ if there was an appreciable risk I'd go blind as a result.

If I was already blind, on the other hand, I would definitely train BJJ, it's a great sport for blind people.

Ironically you are in a middle position where it doesn't make sense. Much as I love combat sports, there are many other terrific things you can do in life. Retinal disease is awful and it sounds like you are still young, I would hold off.

Thanks man. Yeah, I'm 31 and am greatful to even be able to see. Don't get me wrong, but its tough. I thought after all this time, I'd be able to get over it, but its still very difficult. Thanks for your input man :0)
 
Wow.. I have a detached retina from boxing, and its not the same thing but its similar I guess. And I don't know, BJJ is the only thing I really have going for me, but I don't know if I would take the risk of going blind.
I think that light rolling, and drilling should be fine though. Just make sure you have partners who understand your condition don't mind "losing" even in flow rolls just to make sure nothing happens. I'm sorry to hear this and I hope you get to continue doing BJJ.. I don't know what I'd do if I couldn't.
Take care!
 
Why not? IIRC sambo does not allow chokes (sport sambo)... May be im wrong though...

Chokes are the least of his concerns, the doc even said she was unsure of how the internal pressure may affect his retina. Being thrown on his head however...

The danger is primarily from impacts, punches, etc. A takedown based sport would not go over very well.
 
Chokes are the least of his concerns, the doc even said she was unsure of how the internal pressure may affect his retina. Being thrown on his head however...

The danger is primarily from impacts, punches, etc. A takedown based sport would not go over very well.

I didnt get to read all that, i thought it was mainly concern of blood pressure from chokes and forearm smashes...
 
This is a very difficult and very personal decision. You have received the opinion of a physician you trust, but it is worth keeping in mind that she admittedly cannot present you with any kind of evidenced based framework to help you assess just how much risk a non-striking sport like bjj really poses. Therefore, you're left with her understandably cautious approach (her job is to look after your health, afterall), and your obvious desire to continue doing something you love. It's a risk-benefit thing, but nobody can really knows just how much risk there is and nobody can tell you just how much benefit and joy you get from bjj. It's your call at the end of the day, just make sure you've really thought this thing through.
 
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