Help me make a big decision!

[OverCoronavirus Pressure]

Clickbait, I know.

But my epileptologist is referring me to a neurosurgeon to take out a bone flap in my dome and drop a wire into my brain: a neuropace.

Same basic thing as a heart pace. It recognizes electrical activity it doesn't like and counters it with impulses.

The important thing- after five years, 70% of patients who have this procedure experience "some relief" of seizure activity.

He tells me that no matter how successful it is, I'll still need medication all my life.

Sherbros, is it go or no go?

 

[nostradumbass]

 

[Chesten_Hesten]

So what are the ramifications if you have a major seizure while this wire is stuck in your brain giving you a large charge?

Does it fuck you up permanently?

Turn you into the Hulk, or simply up you Sherdog Cred?


Seriously, what happens? Could it put you in a worse state?

What do Google reviews say about the procedure?

 

[BisexualMMA]

Do you have severe seizures currently?

 

[minute bull]

Do you need this? Sounds like a surgeon wants to practice exploratory technique or fleece insurance if you don't need it.

 

[OverCoronavirus Pressure]

So what are the ramifications if you have a major seizure while this wire is stuck in your brain giving you a large charge?

Does it fuck you up permanently?

Turn you into the Hulk, or simply up you Sherdog Cred?


Seriously, what happens? Could it put you in a worse state?

What do Google reviews say about the procedure?

I haven't asked but it's not that big a charge, only a tiny corrective trickle of electricity.
The idea is that if I have a seizure starting, misfiring neurons, it'll correct it like smoothing out a sonic waveform.

I haven't googled it, it seems pretty straightforward.

 

[Gazwald]

I hated having seizures, so if I had them routinely I think I'd try anything suggested.

 

[OverCoronavirus Pressure]

Do you have severe seizures currently?

Too often for my liking or my doc's. He's presenting my case today to his team and discussing the options.

There are two: this procedure, or more medication. I'm almost maxed out right now.

But I'm disinclined to have the surgery. I don't like those odds much.

 

[Chesten_Hesten]

I haven't asked but it's not that big a charge, only a tiny corrective trickle of electricity.
The idea is that if I have a seizure starting, misfiring neurons, it'll correct it like smoothing out a sonic waveform.

I haven't googled it, it seems pretty straightforward.

Sounds like an individual mileage may vary thing.

Rather like Stemcell treatment.

On the other hand, you know what you're looking at without any change made. So.....

 

[weich]

It seems like there is some good research and science in this device:

The RNS represents a milestone in the treatment of medically resistant epilepsy, providing an alternative to surgery that is both adjustable and reversible. As currently used, the RNS appears to be effective and well tolerated and has the capability to treat epilepsy syndromes that had no further treatment options such as bitemporal epilepsy or epilepsy with onset in the eloquent areas of the brain. Further research and clinical experience with this new treatment will provide a more clear understanding of the mechanisms underlying its effect on seizures, as well as further refinement of indications and applications.

Source

It seems like a low risk/high reward situation to me.

 

[OverCoronavirus Pressure]

Do you need this? Sounds like a surgeon wants to practice exploratory technique or fleece insurance if you don't need it.

I need something to work.
I doubt I'll ever be entirely free of seizures.
It was disappointing to hear that the procedure won't make it so I can leave meds behind .

 

[weich]

Too often for my liking or my doc's. He's presenting my case today to his team and discussing the options.

There are two: this procedure, or more medication. I'm almost maxed out right now.

But I'm disinclined to have the surgery. I don't like those odds much.

What odds? It seems to have an extremely low failure rate and reduces seizures, on average, by 50 percent.

 

[luv24nic8]

I wouldn't do surgery - what happens if they f up? Are they going to take care of you and wipe your ass for the rest of your life? You think you have problems now.... Your a notch on a surgeons resume-

 

[OverCoronavirus Pressure]

I hated having seizures, so if I had them routinely I think I'd try anything suggested.

I was ready to do the surgery but what the doc had to say made me balk.
It's not something I have to decide right away.

 

[FacePunch]

70% is good odds. Do it.

I had a friend die from a seizure disorder about 2 years ago, in his early 30s. I'd go for it.

 

[minute bull]

I need something to work.
I doubt I'll ever be entirely free of seizures.
It was disappointing to hear that the procedure won't make it so I can leave meds behind .

Your Sherhandle takes on new meaning.

How's your liver function on medication?

 

[Chesten_Hesten]

But I'm disinclined to have the surgery. I don't like those odds much.

And who wants to go around like this

At least you came to the right place for advice!

 

[OverCoronavirus Pressure]

What odds? It seems to have an extremely low failure rate and reduces seizures, on average, by 50 percent.

Those odds.
Would you have brain surgery with a fifty percent return ratio?

 

[method115]

what about CBD? Keep seeing FB post about it helping with Seizures

 

[BisexualMMA]

Too often for my liking or my doc's. He's presenting my case today to his team and discussing the options.

There are two: this procedure, or more medication. I'm almost maxed out right now.

But I'm disinclined to have the surgery. I don't like those odds much.

Well, more severe measures have certainly been used / are being used - removing lobes, severing the corpus callosum, etc. Inserting a wire isn't all that radical comparatively. I wouldn't be too freaked out by the "holy shit opening my skull!" aspect and I would say to trust your doctors in general...but that sounds like a serious enough step that you wouldn't be out of place to ask for a second opinion if you wanted.