girl living with horrific tissue disease

Discussion in 'Mayberry Lounge' started by dissectingaorticaneurysm, Apr 30, 2019.

  1. dissectingaorticaneurysm

    dissectingaorticaneurysm Red Belt

    Jan 23, 2019
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    Carli has a disease that is ‘turning her into stone.’ The incredibly rare condition known as Fibrodysplasia ossificans progressiva (FOP) has caused Carli’s muscles, tendons and ligaments to turn to bone, fusing her into a ‘frozen’ position. Carli’s hip has locked, forcing her to stand on one leg.

    This intimate film shows how Carli battles with intense pain on a daily basis and has already lost significant mobility throughout her body. We see how she struggles to eat, because her jaw now only opens 2mm. There is currently no cure for FOP, but Carli is participating in a clinical trial to help treat the condition. But despite slowly turning into a human statue, Carli is refusing to let the condition stop her from moving in with her boyfriend and living life to the full whilst she can.

    Surgical removal of the extra bone growths has been shown to cause the body to "repair" the affected area with even more bone. Although the rate of bone growth develops differently depending on the patient, the condition ultimately leaves those affected in a “frozen” position as new bone replaces musculature and fuses with the skeleton. Adult patients eventually have to decide on what position they wish to predominantly take for the rest of their lives.
    Alphaboy, DADA360 and BisexualMMA like this.
  2. JabToucher

    JabToucher Yellow Card

    Aug 23, 2018
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  3. Chesten_Hesten

    Chesten_Hesten The Wiener of Steel

    Mar 7, 2006
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  4. Alphaboy

    Alphaboy Silver Belt

    Mar 15, 2015
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    Some genes just need to be bred out of existence.

    I'm not saying this to sound mean, but look at the suffering it causes why would you want to subject your kid to that?

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