I have low testosterone, but I'm not starting TRT.

Goat Meal

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Hi, folks. I saw a TRT thread floating around here recently and was going to share my story but all the comments were out of order. I thought creating my own thread might be a good idea. If not, just dump it or wasteland it if this kind of thing is frowned upon. I'm sharing my story for a few reasons. One, to possibly give fellow young men who suffer from low T hope that they don't have to live the rest of their lives in this sorry state and two, to keep men like me from rushing to TRT.

About 12-15 months ago I began noticing things about myself. My energy level in general just kind of sucked. I was moody, sometimes even depressed (explaining to my wife that I felt "understimulated" at times for no reason). Though I felt engaged at work, nothing outside of it really felt enjoyable other than spending time with my family of course. I dropped BJJ, avoided time with friends (mostly b/c I was sleepy), and cut everything from my life that wasn't work/school and family. I just didn't have the energy. I chalked it up to a long commute, having a toddler with a predilection for not sleeping, and going to school full time.

Around 10 months ago I was experiencing some sexual problems. For one, I had no interest in sex. I would go weeks at a time without having sex with my wife and honestly didn't really notice the infrequency of sex until she brought it up. The lack of interest was to such a degree I didn't even masturbate and haven't in god knows when. Again, I chalked it up to work, school, commute, and not having any time to exercise. When I got to the point where I was experiencing ED was when I started freaking out and I realized maybe there was something more.

I saw my physician in September who did blood work. I was borderline low in testosterone (295, reference range 245 to 1005, i think), normal vitamin B and low in vitamin D. He prescribed megadoses of vitamin D and Wellbutrin (to treat my intermittent depression and focus problems) for 3 months and ordered me to get my D and testosterone re-tested in December. Between September and December my energy did improve. I dropped Wellbutrin after about 3 weeks because it didn't do anything, but I did feel a little better with vitamin D. Unfortunately the sexual issues persisted.

I was re-tested in December. Vitamin was back to within normal range but I was officially testosterone deficient (206). I didn't really care because hey TRT is the new fountain of youth medicine, right? I'll just put on some gel or take some pills and I'll be back to my usual, horny, energetic self. As my doctor explained, it's not that simple. There are risks and some consequences that I didn't want to suffer, such as infertility with some forms of treatment. Additionally cancer runs in my family, so while he admits testosterone therapy doesn't CAUSE cancer that it could accelerate a carcinoma's growth, which is obviously bad.

I'm lucky to have a doctor that wanted to know first and foremost WHY a 32 year old such as myself has low testosterone in the first place. More blood work revealed I had 600% more prolactin in my system than what is normal. I was immediately given an MRI, which showed a macroadenoma on my pituitary and pressing against my optic nerves.

Should all go well, I'll be treated with either surgery or medication and in theory my testosterone level should go back to normal naturally.

All this to say, if you're younger than 50 and low in T and just feeling crummy and not like yourself take the extra test to check your other hormones. In my research I read a few really bad stories about doctors fast tracking TRT and a few years later they could barely see and they suffered the worst headaches they've ever felt because the underlying cause of their low T, the brain tumor, was never discovered.

That's really it. Hope everyone is doing well. Carnal, if you're out there, I love you.
 
God bless you Goat Meal. Hope all goes well and you can get back to being yourself again for your kid and your wife. They need you.
 
Thanks for the info man, I've heard prolactinoma's a relatively common cause for low testosterone/low dopamine issues in males. Good thing to look out for and keep in mind.

Prolactin lowering meds like dostinex and bromocriptine are sometimes used off label to increase libido/decrease refractory time.
 
Your doctor rocks. Most are simply interested in masking the symptoms instead of treating the underlying problem. Kudos to him. Hope everything goes well and you feel better.
 
Awesome read and share ts. Thanks.

Im not against TRT whatsoever but I think its being overprescribed.
 
you are going to school, working and have a toddler? That would crush me low trt or not...
 
Interesting read, GOAT.

I'm curious to know what was out of line with the last TRT thread?
 
Interesting read, GOAT.

I'm curious to know what was out of line with the last TRT thread?
I think he means the posts (by date order) were scrambled. I just fixed it if anyone was interested in still posting in that thread.
 
Thanks for sharing, man. My brother has asked me about TRT (thinking I'd have an informed opinion due to me reading up on PL'ing and such) and I steered him away from it. Yours is another case in point I can refer to. Thanks.
 
Thanks for the support and words thus far, guys. I've been swamped as of late getting the required tests needed. An update, in case anyone cares. I saw an ophthalmologist on Monday. He said my field of vision looked okay and my optic nerves looked okay, but the fact that my vision in either eye is worse than 20/20 and NOT correctable is a cause of concern. I shared this with my Endocrinologist today, who said hogwash. Field if vision is what is important with regard to this type of tumor. She did want me to do more blood testing, however. Particularly, she's interested to know if this thing is secreting anything else. Then she threw me for a loop. While my prolactin is elevated, she feels its elevation isn't consistent with a prolactin secreting tumor (lolwut). In her expert opinion my prolactin is raised because the tumor is pressing on the "stalk" at the top of the pituitary. Either way, removal of the tumor will have the same effect: lowering of my prolactin.

If the tumor is secreting anything else, such as cortisol, thyroid hormone (not sure of the clinical name), or growth hormone then surgery is the only option. However, if it's just causing increased prolactin then that is treatable with medication. To me, judging by her attitude, it seems she is leaning toward surgery. That decision will be made by the neurosurgeon on the 28th when I see him.

you are going to school, working and have a toddler? That would crush me low trt or not...

It's quite an experience, yes. Fortunately I'm able to juggle everything. Just another year or so and I won't have to worry about it.
 
Update: saw the neurosurgeon on the 28th. He confirmed that the tumor is not prolactin secreting and so the only option is surgery. I must see an Ear, Nose, and Throat specialist on the 16th, in addition to having another MRI and CT scan. I presume after that surgery will occur.

The neurosurgeon said that while it's not likely there could be some complications post-surgery, most of which will result in life long hormone therapy. At that point I guess I'll change the title of this thread to "I have low testosterone, but I'm not starting TRT, oh wait, yes I am." Again, it's not likely but it's scary none-the-less.
 
God Bless you Goat Meal. Post the day of your surgery and there might be a couple of guys in here that would remember you in their prayers. Hope it turns our great for you.
 
Best of luck to you bro.
 
Thanks for sharing your story with us, and beat this mudafuka!
 
Nice read. Prolactin is one nasty hormone with some devastating effects.

Hope all goes well with your procedure if you haven't had it yet.
 
Update - surgery is this Friday. I'm excited but nervous. Oddly, not much has happened since my last post as things have progressed slowly. I saw an ENT, who shoved two tubes way up my nose and said "yup, everything looks amenable up there." I was like ok, cool. After that I received another MRI and a CT scan for navigational purposes to assist the surgeons.

The name of the procedure is transsphenoidal resection of the pituitary adenoma. All that means is the surgeons will go through my nose to pluck out the tumor. If you want to learn more there are tons of videos on Youtube.

Afterward I'll be in ICU for 24 hours. Complications are rare, but the most common is diabetes insipidus and of course I'll most certainly have a sinus headache. DI is usually temporary and treated with medicine until it goes away on its own. Even rarer is a CSF leak (cerebrospinal fluid) where brain fluid pours from my nose like a faucet. That will require additional surgery.

If all goes well Monday I should be released, but it's possible I'll have to stay until Wednesday. I'm back in school next week so I'm hoping for a speedy recovery!
 
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