It's fucking brutal. My mom died of Huntingtons 6 years ago. It was a slow and steady decline over 4 years until her death. The last year was horrific. Thankfully my country has UHC so everything was covered for her care. Our whole family probably would of went insane if we had to cough up 10's of thousands of dollars every few months and dealt with the bureaucracy of health insurance companies during that time. It was hard enough as it was just witnessing the whole situation.
I am so sorry to hear this. I know how hard it is to witness this disease. I never cried so hard in my life when my girlfriend was going thru this.
My girlfriend wanted me to take care of her but it is an impossible task. I begged and pleaded with her to let her family take care of her but her condition kept her from making rational choices. I had her father and sister updated daily.
I could not take care of her any longer. I did get her set up with Medicare and SSI She lost the ability to talk, walk, and feed her shelf.
Then finally her family got to take over and got her into a care center. She was so stubborn about this but she was a fighter.
All I can say is how bad this disease is.
I can only explain it as:
You watch somebody go crazy and you witness a person grow backwards in life. Walking, talking, thinking, eating and going to the bathroom, all the stuff you learned when you were growing up it just goes in reverse, it leaves you. It's nothing but being bed ridden with a feeding tube.
I noticed in the second video that the vet was already losing his speech. The disease also makes you think about committing suicide a lot.
Most people do not die from Huntingtons, they die from suicide, accidents like fires and choking caused by it. Some even choke on their tongues.
There is so much more but I'll leave it like this.
In the end she did not know me she just was in a happy place in her mind.